WCC Resources
The Wisconsin Cancer Collaborative is proud to announce the release of our Wisconsin Childhood Cancer Action Plan 2024-2028. This Childhood Cancer Action Plan aims to fill the gaps found within the awareness, education, and care given to those with cancer as children. The Action Plan also addresses the long-term physical, psychological, and psychosocial impacts cancer has on patients throughout their lifetime, and on their families, support systems, and care teams.
Pediatric Cancer in Wisconsin Webinar (September 2023)
In honor of September Pediatric Cancer Awareness month, this webinar focused on the current state of pediatric cancer in Wisconsin.
Hear from our panel of experts working on pediatric cancer including featured speaker, Dr. Christian Capitini of the UW Carbone Cancer Center, as well the Wisconsin Cancer Reporting System and others.
This webinar explored:
- Latest pediatric cancer data and trends in Wisconsin and Nationally
- Current pediatric cancer treatment breakthroughs and research updates
- Resources and programs available in Wisconsin that support pediatric cancer patients and survivors
Partner Resources
Psychosocial Support for Children and Caregivers
Gilda’s Club Madison offers support for children’s, teen’s, young adults, and caregivers through their Youth & Family programs and their Young Adult programs.
Joshua's Camp offers free services, including a four-day inclusive stay at a local resort, for families with a child 17 or younger being treated for cancer or out of treatment for less than three years.
The Hope Portal is a searchable hub that offers resources for childhood cancer patients and their families during treatment.
Childhood Cancer Survivorship
Better Together is a searchable hub, compiled by CAC2, which highlights organizations that provide support for survivors of childhood and AYA cancer.
The CAC2 Survivorship Toolkit provides education and resources for childhood cancer survivors and families, covering topics like transitioning to adulthood, insurance and financial health, and physical health and late effects.
Resources for Providers
The Children’s Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers is a resource for healthcare professionals who provide ongoing care to survivors of pediatric malignancies.
Pediatric Palliative and Hospice Care
This guide, created by the Courageous Parents Network, provides an overview of the benefits of palliative care in pediatric oncology, helping you understand how it can make a meaningful difference. Also available in Spanish.
This Care Plan Book, created by Pediatric Palliative Care Coalition, was created for families, caregivers and medical professionals, and covers topics like medical history, appointments, medications, and legal topics.
Childhood Cancer Statistics
The MACC Fund's factsheet "Facts About Childhood Cancer" highlights key childhood cancer statistics to raise awareness about incidence, survivorship, and challenges faced by patients and their families. These facts are also available for sharing on social media.
The American Childhood Cancer Organization has organized various sources of national statistics on child and adolescent cancer incidence, survival, and research funding, including some fast facts for sharing.
Federal and State Policy*
National Alliance for Care at Home provides an overview of pediatric concurrent care and a policy implementation toolkit to communicate the impact of this policy for people under 21 years of age receiving active care.
The MACC Fund discusses current, pending federal legislation affecting children with cancer and their families, in addition to providing resources for reaching out to relevant members of Congress.
*Please note: WCC doesn't lobby or advocate for any specific policies. These resources are provided for educational purposes.
Adolescent and Young Adults (AYA) Resource Library
The Wisconsin Association of Hematology and Oncology, Indiana Oncology Society, and The Arizona Clinical Oncology Society have teamed up to create a curated Adolescent and Young Adults (AYA) resource library. Topics include cancer risk, screening and prevention, fertility preservation, psychosocial support, financial navigation, survivorship planning, and local referral options. These resources feature national best practices and community-based initiatives tailored to the unique needs of adolescent and young adult patients navigating cancer care.
WCC Partner Spotlights
The MACC Fund is a non-profit that provides critical funding for childhood cancer and related blood disorders research at The Medical College of Wisconsin, Children’s Wisconsin, UW Carbone Cancer Center and Marshfield Clinic.
Their mission is to find a cure for childhood cancer and related blood disorders by providing funding for research.
Coalition Against Childhood Cancer (CAC2) is a collaborative network of nonprofits, corporations, and individuals from 41 states and nine countries, supporting and serving the childhood cancer community. CAC2 members effectively advance a variety of childhood cancer causes by unifying their efforts.
Dedicated to curing leukemia, lymphoma, myeloma, and other blood cancers, The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary (nonprofit) health organization dedicated to funding blood cancer research and providing education and patient services.
The Children's Wisconsin team cares for every aspect of a child's health. This includes their physical, social and mental well-being.
In order to provide highly specialized cancer therapies, Children's Wisconsin offers a range of clinical trials through our own research programs as well as through participation in Children's Oncology Group (COG), an organization comprised of the world’s experts dedicated to studying childhood cancer.
For more than a decade Courageous Parents Network (CPN), a nonprofit organization, has oriented, equipped and empowered those caring for children with a serious medical condition. CPN celebrates This Shared Journey: parents sharing their perspectives to support others and build community; clinicians sharing their expertise and commitment while learning from the insight and experience of families.
The American Childhood Cancer Organization (ACCO) was founded in 1970 by parents of children diagnosed with cancer. Formerly known as Candlelighters, ACCO is the nation’s oldest and largest grassroots organization dedicated to childhood cancer.
Pediatric Palliative Care Coalition (PPCC) provides information, education and resources for families of children with life-limiting conditions, and for the medical providers and professionals who support them.
PPCC’s website holds practical toolkits, educational webinars, extensive external resources, advocacy information, and more — all designed to Light the Way in pediatric palliative and hospice care.
Gilda’s Club Madison uplifts and strengthens people impacted by cancer by providing support, fostering compassionate communities, and breaking down barriers to care.
The Gilda's Club Madison team works toward that mission by providing free emotional support, cancer education, and hope to children and adults living with any kind of cancer, and those who care for them.
The UW Health Kids Carbone Cancer Center team provides the latest and best treatment options so children with cancer or a blood or bone marrow disorder can heal quickly and grow up healthy.
Their doctors are national leaders in treatment and research, and their research improves the care of children with cancer and blood and bone marrow disorders around the world.
Camp One Step by Children’s Oncology Services is a leader in providing empowering, supportive, educational and fun experiences for children (ages birth -19) who have been diagnosed with cancer and their families.
Camp One Step provides free year-round camp experiences for kids with cancer and their families that foster joy, belonging, confidence, and lifelong friendships.
The Badger Childhood Cancer Network serves families from all over Wisconsin whose child has been diagnosed with cancer or a life threatening blood disorder. The organization provides emergency financial assistance, and hosts a support group and family fun events to pediatric cancer families.
Brave Like Mackenzie is an all-volunteer childhood cancer organization that provides support to patients and their families as they battle pediatric cancer. In addition, they help support the MACC Fund Center through gifting books, art supplies, and toys for patients who are receiving treatment.
Get Involved
How can we improve outcomes for children with cancer in your community? Are we missing an important resource or partner connection?
Contact our Outreach Team for support, ideas, and resources to advance your childhood cancer work.